It’s been a year now since our journey began and it’s mind blowing to see how far our sweet girl has come. Haven has endured so much in this year, rigorous testing and evaluations some that lasted for hours on end, Multiple procedures, MRI that lead to the discovery of her Chairi, EEGs, hearing and […]

Last night was Havens sleep study at Riley’s, I have seriously been dreading it for months. My sweet girl being Trapped in a hospital, wires upon wires covering her head and body, strange people touching her and messing with her all night long, especially since she just went through SO much with her MRI and […]