There’s something about being a girl that even long before you are expecting or have kids fills you with hopes and dreams of the life you’ll have when those dreamt about babies someday become reality. Then you become pregnant and all those dreams start to really come alive, you find out you’re having a girl […]

I’m gonna do things a little differently this post. I usually post about our hectic life and struggles with Haven. This week has been freaking hard, I have struggled to stay positive and find the good in every day. So I’m gonna write about something different, things I love and enjoy and applaud. So sorry […]

I have been in emotionally controlling and abusive relationships, and that love hurt. I have been is physically abusive relationships, and boy did that love hurt. I have watched those I love struggle with drug addiction and mental illness, and that love hurt. I have been neglected by those who were supposed to be there, […]

Post-traumatic stress disorder (PTSD) is a mental health condition that’s triggered by a terrifying event — either experiencing it or witnessing it. Symptoms may include flashbacks, nightmares and severe anxiety, as well as uncontrollable thoughts about the event. Most people who go through traumatic events may have temporary difficulty adjusting and coping, but with time […]

Wow y’all, I’ve been wanting to write for awhile but it’s all been so overwhelming I haven’t known what to say or how to begin. I’ll start with thank you, thank you, thank you, thank you to SO many of you who have gone out of their ways to help, support, and love the girls […]

Last week was insane, appointment after appointment, therapy after therapy, in addition to the usual we met with Havens Geneticist and she also had her Special Education testing. On top of all that Mia has started t-ball, had her first game, and her preschool graduation. Weeks like that leave me in a fog. Almost like […]

As Havens surgery date inches closer and closer so does my lack of sleep and the never ceasing buzz in my mind of thoughts and questions. So many keep saying that Havens going to be a different child after this, and as hopeful as I am for that it also terrifies me. I love my […]

It’s been a year now since our journey began and it’s mind blowing to see how far our sweet girl has come. Haven has endured so much in this year, rigorous testing and evaluations some that lasted for hours on end, Multiple procedures, MRI that lead to the discovery of her Chairi, EEGs, hearing and […]

Last night was Havens sleep study at Riley’s, I have seriously been dreading it for months. My sweet girl being Trapped in a hospital, wires upon wires covering her head and body, strange people touching her and messing with her all night long, especially since she just went through SO much with her MRI and […]

Friday afternoon, what usually is an afternoon of in home speech therapy, instead entailed me holding my phone with my shoulder, while talking to Haven’s neurologist on how to meet my special needs child’s need’s during her sedation and procedures, all while holding a bag full of clothes for poor Mia to puke in with one […]